Monday, August 8, 2011

Update on Matt... Mad Love Boy.

This is a message sent form my niece/Matt's primary advocate, and it is so GOOD!  I adore the fact that he flared his nostrils at the smell of coffee!  That's our boy! WHOOOT!

Matt's doing pretty well right now. He was alert and awake most of the day today. He got a lot of stimulation and didn't seem to tire of it as quickly as usual. We have been exercising his arms and hands, giving him different things to smell (coffee, dryer sheets, peppermint, etc.), and of course talking to him and playing music. He was really good about focusing on the person talking to him and he did a lot of mouth movements in response. He flared his nostrils and moved his tongue out for the coffee beans, and I hadn't seen his nostrils do anything until then. His face was a little more expressive and his mouth movements look more like words are being formed, although we still can't understand anything. He has also been moving his left leg voluntarily.

He was scheduled to have surgery on his spine tomorrow morning, but as of this moment it looks like that will be postponed. He had a fever Thursday afternoon that spiked pretty high (103.8 at the worst), so there was concern about infection. Since then, the fever has been under control and his white blood cell count hasn't increased. They even removed some white blood cells, tagged them, put them back in, then did a white blood cell scan to locate the tagged cells. The results didn't reveal an infection site. If they decide to go forward with the surgery tomorrow (or set a new date/time), I'll send a quick update


Steph(anie) said...

This is great! And they can tag blood cells?! How crazy is that? We are so lucky to live in a time when science has come so far.

JoJo said...

Wow this is just the best news!!! That boy is a fighter. He's gonna make it, I know it. Fingers crossed that the surgery goes as scheduled.

Let me know when you hear!

Petit fleur said...


You know, I glazed right over that part... didn't even take it in! I'll have to read it again. All I retained was the stuff pertaining to his responses and alertness. Thanks for pointing that out.

Petit fleur said...

Jojo! Thanks for cheering and being on the team! It is very uplifting to see others get as excited as I feel about our boy!

Thank you.

JenSandberg said...

Wow. You can be so creative in healing with people. I'm so happy to hear there's progress. Lots of love and healing to him and to you, and the rest of your family.