This is a message sent form my niece/Matt's primary advocate, and it is so GOOD! I adore the fact that he flared his nostrils at the smell of coffee! That's our boy! WHOOOT!
Matt's doing pretty well right now. He was alert and awake most of the day today. He got a lot of stimulation and didn't seem to tire of it as quickly as usual. We have been exercising his arms and hands, giving him different things to smell (coffee, dryer sheets, peppermint, etc.), and of course talking to him and playing music. He was really good about focusing on the person talking to him and he did a lot of mouth movements in response. He flared his nostrils and moved his tongue out for the coffee beans, and I hadn't seen his nostrils do anything until then. His face was a little more expressive and his mouth movements look more like words are being formed, although we still can't understand anything. He has also been moving his left leg voluntarily.
He was scheduled to have surgery on his spine tomorrow morning, but as of this moment it looks like that will be postponed. He had a fever Thursday afternoon that spiked pretty high (103.8 at the worst), so there was concern about infection. Since then, the fever has been under control and his white blood cell count hasn't increased. They even removed some white blood cells, tagged them, put them back in, then did a white blood cell scan to locate the tagged cells. The results didn't reveal an infection site.If they decide to go forward with the surgery tomorrow (or set a new date/time), I'll send a quick update